What an amazing tweetchat!
Our engagement with you doubled from last month, we all wrote 559 tweets, had 50 participants, received 726,202 impressions, with key influencers were @fightingstrokes, @stroketattler, @dailycaring & @sissstroke. No wonder my fingers were on fire! Thank you v much, it was fun and informative. We were absolutely delighted to receive a tweet from the @natlstrokeassoc (see below)
So here’s what I gleaned from our #strokerecovery & technology tweetchat tonight but feel free to study the symplur #strokerecovery transcript if you like.
We asked you:
T1. What technology do you use/offer in #strokerecovery therapy?
- Electrical stimulation albeit it was offered tom slowly in the community at 11 months
- Scheduling apps to coordinate family visits
- Apps to help with aphasia and alarms to take medication
- Wii gaming technology for rehabilitation which also involved your children, though it doesn’t work for everyone.
- Blogging in itself helped keep the brain active and was used in #strokerecovery
- @natlstrokeassoc – ‘Wii, Constraint Therapy, Bioness, WalkAid, Mobile apps for aphasia, Myopro, sling supported treadmills.
T2. Is there some technology that you would use? Is it just about cost?
- The IREX system ie, uses immersive video gesture control technology to place patients into virtual sport or gaming environments http://www.gesturetekhealth.com/products-rehab-irex.php
- Transcranial electromagnetic stimulation for aphasia
- Electrical stimulation products
- We would use basic products which would be the basis for more complex based activities
T3. What the main barriers to treating stroke patients?
- A lack of knowledge of available products
- Costs/funding perhaps leasing arrangements is one solution?
- Lack of SALT therapist time.
- Mood, time, mood, depression, fatigue, therapy time, muscle tightening and available technology
- Insurance Companies not applying the ICF model. Ie, The ICF classification system focuses on human functioning and provides a unified, standard language and framework that captures how people with a health condition function in their daily life rather than focusing on their diagnosis or the presence or absence of disease.
- Huge lack of technology-based research for aphasia and cognition.
- Lack of evidence-based research for cognitive rehabilitation.
- We don’t share information enough with patients & families at home.
- Families are overworked with assisting with daily living activities. (Teasell)
- Families are crucial and there is again a lack of clinical evidence.
- Clinicians and academics must work better together. Things get lost in translation.
- Patient input is vital at every stage.
T4. Can we overcome those technological intervention barriers? Is it not just cost?
- Yes cost and funding are issues, need lease agreements and insurance company education?
- Computer-based or web-based therapies to help aphasic patients.
- Overcome fatigue with early diagnosis, pharma drugs, psychological counselling CBT talking therapy, physical exercise.
I’m certainly going to find out more about the CogWatch product which helps with daily living activities. This is CogWatch is a European Commission funded research project whose aim is to enhance the rehabilitation of stroke patients, a third of whom will experience long term physiological and/or cognitive disabilities. A significant proportion of these patients can suffer from Apraxia or Action Disorganisation Syndrome (AADS) which, among other symptoms, is demonstrated by the impairment of cognitive abilities to carry out activities of daily living (ADL).
We failed on tweeting ideas based on finding out about evidence-based technology and I think we should share this in a tweetchat in the future. I’m going to sign off and feed my hungry kids now but I’ll leave you with this poignant tweet I received that,
‘People want to feel ‘normal’ & to do things for themselves.’